Standard of Care for Lipedema in the United States: best resource for information (upload to your patient portals)
FDRS provides education and resources to patients, physicians, therapists, and researchers. Hosts annual conference for all.
Dr. Karen Herbst is one of the most knowledgeable people re. Lipedema and other loose connective tissue disorders.
The Lipedema Foundation: supports research that addresses biology, genetics, and epidemiology of Lipedema